NeuropointFollowing an extensive 18-month pilot period, the QOD Tumor Registry is now open to new centers. The QOD Tumor Registry was initially developed in 2012 in collaboration with the AANS/CNS Joint Section on Tumors.
The QOD Tumor Registry follows patients receiving surgery for most primary and metastatic intracranial tumors. The registry collects patient demographics, presenting symptoms, comorbidities, histological diagnosis, operative characteristics including approach and use of surgical adjuncts, intraoperative and postoperative complications, hospital stay, 30-day readmission, recurrent surgery, progression and mortality. The registry also collects patient-reported outcomes (PROs) measuring cognition impairment, physical function, QALY and cognitive function after surgery.
Mayo Clinic serves as the Coordinating Center for the QOD Tumor Registry and manages data collection and analysis. The registry is housed on the REDCap (Research Electronic Data Capture) platform which has provided comprehensive data services for other QOD projects.
Contact NPA for additional information, or if you are interested in developing a new module.